Healthcare Providers

Clinicians may learn more about caring for patients and families with the ABCDEF Bundle. 

The F element, Family Engagement and Empowerment,​ focuses on examining the concept of family presence in the ICU and identifying strategies to create family engagement and empowerment.​​​​

 

 Reading List - Outcomes

 
Family Outcomes

Davidson JE, Jones C, Bienvenu OJ. Family response to critical illness: postintensive care syndrome - family. Crit Care Med. 2012 Feb;40(2):618-624.

Keenan HT, Runyan DK, Nocera M. Child outcomes and family characteristics 1 year after severe inflicted or noninflicted traumatic brain injury. Pediatrics. 2006 Feb;117(2):317-324.

Functional Outcomes

Abdulsatar F, Walker RG, Timmons BW, Choong K. “Wii-Hab” in critically ill children: a pilot trial. J Pediatr Rehabil Med. 2013 Jan 1;6(4):193-204.

Bennett TD. Functional status after pediatric critical care: is it the disease, the cure, or both? Pediatr Crit Care Med. 2015 May;16(4):377-378.

Cameron S, Ball I, Cepinskas G, Choong K, et al. Early mobilization in the critical care unit: a review of adult and pediatric literature. J Crit Care. 2015 Aug;30(4):664-672.

Choong K, Al-Harbi S, Siu K, et al; Canadian Critical Care Trials Group. Functional recovery following critical illness in children: the “wee-cover” pilot study. Pediatr Crit Care Med. 2015 May;16(4):310-318.

Choong K, Foster G, Fraser DD, et al; Canadian Critical Care Trials Group. Acute rehabilitation practices in critically ill children: a multicenter study. Pediatr Crit Care Med. 2014 Jul;15(6):e270-e279.

Choong K, Koo KK, Clark H, et al. Early mobilization in critically ill children: a survey of Canadian practice. Crit Care Med. 2013 Jul;41(7):1745-1753.

Farris RW, Weiss NS, Zimmerman JJ. Functional outcomes in pediatric severe sepsis: further analysis of the researching severe sepsis and organ dysfunction in children: a global perspective trial. Pediatr Crit Care Med. 2013 Nov;14:835-842.

Hopkins RO, Choong K, Zebuhr CA, Kudchadkar SR. Transforming PICU culture to facilitate early rehabilitation. J Pediatr Intensive Care. 2015 Dec;4(4):204-211.

Knoester H, Bronner MB, Bos AP. Surviving pediatric intensive care: physical outcome after 3 months. Intensive Care Med. 2008 Jun;34(6):1076-1082.

Namachivayam P, Taylor A, Montague T, et al. Long-stay children in intensive care: long-term functional outcome and quality of life from a 20-yr institutional study. Pediatr Crit Care Med. 2012 Sep;13(5):520-528.

Ong C, Lee JH, Leow MK, Puthucheary ZA. Functional outcomes and physical impairments in pediatric critical care survivors: a scoping review. Pediatr Crit Care Med. 2016 May;17(5):e247-e259.

Pollack MM, Holubkov R, Funai T, et al; Eunice Kennedy Shriver National Institute of Child Health and Human Development Collaborative Pediatric Critical Care Research Network. Pediatric intensive care outcomes: development of new morbidities during pediatric critical care. Pediatr Crit Care Med. 2014 Nov;15(9):821-827.

Taylor A, Butt W, Ciardulli M. The functional outcome and quality of life of children after admission to an intensive care unit. Intensive Care Med. 2003 May;29(5):795-800.

Global Outcomes

Butt W, Shann F, Tibballs J, et al. Long-term outcome of children after intensive care. Crit Care Med. 1990 Sep;18(9):961-965.
Buysse CM, Raat H, Hazelzet JA, Hop WC, Maliepaard M, Joosten KF. Surviving meningococcal septic shock: health consequences and quality of life in children and their parents up to 2 years after pediatric intensive care unit discharge. Crit Care Med. 2008 Feb;36(2):596-602.

De Mos N, van Litsenburg RR, McCrindle B, Bohn DJ, Parshuram CS. Pediatric in-intensive-care-unit cardiac arrest: incidence, survival, and predictive factors. Crit Care Med. 2006 Apr;34(4):1209-1215.

Jones S, Rantell K, Stevens K, et al; United Kingdom Pediatric Intensive Care Outcome Study Group. Outcome at 6 months after admission for pediatric intensive care: a report of a national study of pediatric intensive care units in the United
Kingdom. Pediatrics. 2006 Nov;118(5):2101-2108.

Namachivayam SP, Alexander J, Slater A, et al; Paediatric Study Group and Australian and New Zealand Intensive Care Society. Five-year survival of children with chronic critical illness in Australia and New Zealand. Crit Care Med. 2015 Sep;43(9):1978-1985.

Namachivayam P, Shann F, Shekerdemian L, et al. Three decades of pediatric intensive care: who was admitted, what happened in intensive care, and what happened afterward. Pediatr Crit Care Med. 2010 Sep;11(5):549-555.

Pratt CM, Hirshberg EL, Jones JP, et al. Long-term outcomes after severe shock. Shock. 2015 Feb;43(2):128-132.

Quasney MW, López-Fernández YM, Santschi M, Watson RS; Pediatric Acute Lung Injury Consensus Conference Group. The outcomes of children with pediatric acute respiratory distress syndrome: proceedings from the Pediatric Acute Lung Injury Consensus Conference. Pediatr Crit Care Med. 2015 Jun;16(5 Suppl 1):S118-S131.

Van der Heide P, Hassing MB, Gemke RJ. Characteristics and outcome of long-stay patients in a paediatric intensive care unit: a case-control study. Acta Paediatr. 2004 Aug;93(8):1070-1074.

Watson RS, Crow SS, Hartman ME, Lacroix J, Folafoluwa OO. Epidemiology and outcomes of pediatric multiple organ dysfunction syndrome (MODS). Pediatr Crit Care Med. 2016. In press.

Health-Related Quality of Life

Ambuehl J, Karrer A, Meer A, Riedel T, Schibler A. Quality of life of survivors of paediatric intensive care. Swiss Med Wkly. 2007 Jun 2;137(21-22):312-316.
Aspesberro F, Mangione-Smith R, Zimmerman JJ. Health-related quality of life following pediatric critical illness. Intensive Care Med. 2015 Jul;41(7):1235-1246.

Colville GA, Pierce CM. Children’s self-reported quality of life after intensive care treatment. Pediatr Crit Care Med. 2013 Feb;14(2):e85-e92.

Conlon NP, Breatnach C, O’Hare BP, Mannion DW, Lyons BJ. Health-related quality of life after prolonged pediatric intensive care unit stay. Pediatr Crit Care Med. 2009 Jan;10(1):41-44.

Cunha F, Mota T, Teixeira-Pinto A, et al. Factors associated with health-related quality of life changes in survivors to pediatric intensive care. Pediatr Crit Care Med. 2013 Jan;14(1):e8-e15.

Ebrahim S, Singh S, Hutchison JS, et al. Adaptive behavior, functional outcomes, and quality of life outcomes of children requiring urgent ICU admission. Pediatr Crit Care Med. 2013 Jan;14(1):10-18.

Knoester H, Bronner MB, Bos AP, Grootenhuis MA. Quality of life in children three and nine months after discharge from a paediatric intensive care unit: a prospective cohort study. Health Qual Life Outcomes. 2008 Mar 11;6:21.

Morrison AL, Gillis J, O'Connell AJ, Schell DN, Dossetor DR, Mellis C. Quality of life of survivors of pediatric intensive care. Pediatr Crit Care Med. 2002 Jan;3(1):1-5.

Polic B, Mestrovic J, Markic J, et al. Long-term quality of life of patients treated in paediatric intensive care unit. Eur J Pediatr. 2013 Jan;172(1):85-90.

Winthrop AL, Brasel KJ, Stahovic L, Paulson J, Schneeberger B, Kuhn EM. Quality of life and functional outcome after pediatric trauma. J Trauma. 2005 Mar;58(3):468-473; discussion 473-474.

Psychosocial Outcomes

Colville G, Kerry S, Pierce C. Children’s factual and delusional memories of intensive care. Am J Respir Crit Care Med. 2008 May 1;177(9):976-982.

Manning JC, Hemingway P, Redsell SA. Protocol for a longitudinal qualitative study: survivors of childhood critical illness exploring long-term psychosocial well-being and needs—The SCETCH Project. BMJ Open. 2014 Jan;15;4(1):e004230.

Nelson LP, Gold JI. Postraumatic stress disorder in children and their parents following admission to the pediatric intensive care unit: a review. Pediatric Crit Care Med. 2012 May;13(3):338-347.
 

 Awards, Grants and Other Opportunities

 
The THRIVE Innovation Award provides an opportunity for clinicians to support the needs of their patients who have survived critical illness. THRIVE hopes to support clinicians as they develop innovative means of coordinating care and services for survivors, both while these patients are still in the ICU and on discharge. Through the Innovation Award, THRIVE will support members of the medical community in their efforts to build and sustain survivor support groups.
 
Healthcare providers who are conducting research directed at improving support for survivors of critical illness are also encouraged to apply for the THRIVE Research Grant to Accelerate Recovery.

The THRIVE Virtual Support Network is dedicated to connecting and supporting survivors of critical illness, their families, inpatient healthcare providers, and ambulatory healthcare providers during the weeks and years of recovery by providing information about common medical conditions experienced by ICU survivors, access to virtual support networks for survivors and families, research and educational opportunities for healthcare providers, and volunteer opportunities.